Lived experience at the heart of the programme

A new kind of partnership

Too often, treatments don’t address what patients actually want, research doesn’t include the groups most at risk, and people feel unheard about how their data are used. The Lived Experience Industry Partnership (LEIP) exists to change that — creating a new alliance between patients and industry that develops agreement on joint priorities.

The partnership works to a clear set of principles: build on what already exists; learn from others; co-produce with people with lived experience, their families and the public alongside industry, clinicians and researchers; and ensure those underrepresented in research and at most risk of mental ill health are involved equitably.

Your data, your say

Public and patient trust is fundamental to a UK-wide data infrastructure. That means absolute transparency and clear communication about data pathways: what data are, where they go, and how they are stored, used and accessed. The programme’s cohorts build on the GLAD (Genetic Links to Anxiety and Depression) Study, whose volunteers have already shaped how this research is done.

Get involved

Communities of practice, deliberative dialogues and priority-setting partnerships all need people with lived experience of mental ill health — as patients, carers or family members. If you would like to take part, we would love to hear from you.